Report on Parent Led Therapist Supervised Articulation Therapy (PLAT) for cleft palate speech disorder study

  By Uncategorized

Dublin Final Report on Parent Led Articulation Therapy 270718

Dr Triona Sweeney and Dr Debbie Sell recently published the Report on Parent Led Therapist Supervised Articulation Therapy (PLAT) for cleft palate speech disorder study (attached).

This two-centre study involving Trinity College Dublin (TCD) and Great Ormond Street Hospital NHS Foundation Trust (GOSH) was carried out between January 2016 and July 2017. The main purpose was to test if parent led intervention is comparable to traditional speech therapy intervention in children with cleft palate speech disorders.

The study was funded by the Cleft Lip and Palate Association of Ireland, the Temple Street Foundation (Ireland) and CLEFT-Bridging the Gap (UK).

In loving memory of Anne McGillivary.

  By CLAPAI News, Cleft Team News

It is with deep regret that we learned of the sudden passing of Anne McGillivary, Temple Street Cleft Coordinator. Anne has helped countless families over many years. Her cheer, her work ethic, her vision and compassion will be missed by all who worked with her and all who met her through cleft services.

Anne had a long association with CLAPAI and in recent years was a valuable and dedicated member of our committee. We are sure that Anne’s influence will extend for generations. CLAPAI extends its condolences to Anne’s family, friends and colleagues.

Anne, we will miss you dearly, RIP.

https://rip.ie/death-notice/anne-mcgillivary-firhouse-dublin/361776

Cleft Lip and Palate Association of Ireland Family Day 2018: 16th June 2018

  By CLAPAI News, Events

The Cleft Lip & Palate Association of Ireland is delighted to announce this year’s trip to a new venue, Carlingford Lough Activity Centre, Co. Louth on Saturday, 16th June 2018.

We have an action packed day planned, full of activity on land and at sea for all age groups.

The Family day is for children and young adults who were born with cleft. It’s for parents, brothers, sisters, babies and grandparents too.

It is a time to enjoy activities together, to chat over tea & coffee, to enjoy the annual raffle and above all to meet other families.

Meet at 9:30am and finish around 4:30pm.  You can book your place using the attached form or by clicking the link to Eventbrite:

Email info@cleft.ie if you have any queries.

We look forward to seeing you for another great family day!

Closing date for booking is Saturday 9th June 2018.

Kind regards

Georgina Wade (Chairperson)

On behalf of Committee 

Calling adults attending cleft services at St James’ Hospital!

  By CLAPAI News, Cleft Care, Cleft Team News, Events

UPDATE- Due to the upcoming weather event in Dublin our information evening scheduled for  1 March has been postponed until 14 March 2018.

The Cleft Lip and Palate Association of Ireland (CLAPAI) is hosting an information evening for adults attending cleft services in St James’ Hospital on Thursday, 14 March 2018 at 19:30 in the Clayton Hotel near Liffey Valley Shopping Centre.

The focus for the evening will be on dental work and the experience of adults who have returned to the service or require the service.

Please RSVP on 0871319803 or info@cleft.ie.

Please note that admission is free and tea and coffee will be served.

AGM & Information Evening 2017

  By CLAPAI News, Events, Good to Know

The Cleft Lip and Palate Association of Ireland AGM & Information Evening 2017

Thursday 30th November at 8pm, (Doors open from 7.30pm) Clarion Hotel Dublin, near Liffey Valley.

The themes this year are surgery and braces and our speakers are as follows:

1. A Parent’s Guide to Cleft Surgery by Mr David Orr, Consultant Cleft Surgeon, Our Lady’s Hospital, Crumlin & St James’ Hospital.

2. My Experience With Braces by Molly Wade, Lead Singer with The Enzymes.

These will be followed by our AGM, Tea/Coffee & General Chat.

The information evening is an ideal time to meet with other parents, adults born with Cleft and medical professionals. Please come along and enjoy a cup of tea/coffee with us all.

To help us plan r.s.v.p. to info@cleft.ie. Admission is free.

Thank you

The Committee

CLAPAI Social Evening including First Aid for Toddlers

  By CLAPAI News, Cleft Team News, Events

CLAPAI is hosting an informal meeting on Tuesday 16th May in the Louis Fitzgerald Hotel, on the Naas Road. (Link attached. below).

The doors will be open at 7:30 with tea and coffee served. At 8pm we are glad to have parent and committee member Aine Doyle give us a session on ‘First Aid for Toddlers’, Aine is a qualified Emergency First Responder as well as a qualified life guard. Her many qualifications include CFR,CFRA,CFRI,OPF,PFA &EFR. Responding to emergencies is something we think every parent will want to know more about.

http://www.louisfitzgeraldhotel.com/location-and-directions.html

Our emergency response session will be followed by a Q&A discussion on common things that affect us as parents of child born with cleft. As a committee we can share our combined experiences but we also want to know where the pressure points are in the service currently.

If you can send any items of specific interest in advance please email info@cleft.ie.

There is no charge for the evening. All are welcome but please send us an email to help us with bookings.

Thanks
CLAPAI

CLAPAI Family Day 2017 – Book Now

  By CLAPAI News, Cleft Team News, Events, Uncategorized

CLAPAI’s Family Day, our most anticipated day of the year, is back for 2017. It will be held from 10am – 4pm on Saturday 17 June at Bay Sports Athlone!

We have planned a fun, active day at this great water park facility for the kids. There is always a great social atmosphere for parents to meet and catch up. The facility has a special baby water park for those under 6.

Booking

For further details on change of clothes needed, cost of wetsuit hire or to book please contact us by twitter, Facebook or email.

 

The Cleft Lip and Palate Association of Ireland Information Evening 2016

  By CLAPAI News, Events

The Cleft Lip and Palate Association of Ireland Information Evening 2016

Thursday 24th November at 8pm, (Doors open from 7:30), Clarion Hotel Dublin, near Liffey Valley.

Agenda:

8:00pm Welcome & Annual General Meeting

8:20pm “I found speaking pretty hard to do”, The impact of parents, teachers and speech therapists working together

Presented by Angie Dromgoole Mother, Audrey Byrne Teacher, Antonia Hussey SLT and facilitated by Roberta Fleming, Speech Language Therapist, Temple Street, CUH

8:50pm Dental Health getting the Best Results for Children Born with a Cleft

Presented by Dr Eleanor Mc Govern, Consultant Paediatric Dentist,Temple Street CUH

9:20pm Tea/Coffee & General Chat

Information evenings are a great way to meet people so please come along. To help us plan r.s.v.p. to info@cleft.ie. Admission is free.

information-evening-2016c

Smile, it’s Autumn!

  By CLAPAI News, Fundraising

It is that wonderful time of year again when the world appreciates smiles, and smiles of all types. It is also the time of year when charities around the world that help people with facial differences come together to both campaign for the people they represent and also to fundraise.

We’d love you to send us in your photos and also to help us fundraise this year. We are partnering with Operation Smile, a charity that supports operations for children with clefts across the developing world.

We are encouraging local communities to help us out this October by having tea mornings, bakes sales at work or school, book clubs and any other idea you can think off to raise money for us and Operation Smile.

If you want to get in touch, or if you are interested in helping us out please contact clapai.info@gmail.com.

CLAPAI Family Day 2016

  By Uncategorized

CLAPAI’s most anticipated and fun day of the year is back again for 2016 and will be held from 10am on Saturday 18 June at the Tallaght Leisure Centre!

We are planning a fun, active day for the kids and a social atmosphere for parents to meet with plenty of surprises throughout the day!

You’ll find a booking form attached here which you can send back to us. Family Activity Day 2016 Booking Form & News V1.3

Watch this space for further details of the day.