The Cleft Lip and Palate Association of Ireland AGM & Information Evening 2017
Thursday 30th November at 8pm, (Doors open from 7.30pm) Clarion Hotel Dublin, near Liffey Valley.
The themes this year are surgery and braces and our speakers are as follows:
1. A Parent’s Guide to Cleft Surgery by Mr David Orr, Consultant Cleft Surgeon, Our Lady’s Hospital, Crumlin & St James’ Hospital.
2. My Experience With Braces by Molly Wade, Lead Singer with The Enzymes.
These will be followed by our AGM, Tea/Coffee & General Chat.
The information evening is an ideal time to meet with other parents, adults born with Cleft and medical professionals. Please come along and enjoy a cup of tea/coffee with us all.
To help us plan r.s.v.p. to firstname.lastname@example.org. Admission is free.
There are some very good videos on feeding your baby available from the American Cleft Palate Foundation, sildenafil and theyÂ have also very kindly sent us several DVDs.
The videos are evenly paced. They cover various options for feeding in bite size pieces. The videos that will be of particular interest to Irish parents are those on the Enfamil nurser from Mead Johnson (which has the same mechanism as the MAM), advice and the Haberman Feeder (more recently referred to as Special Needs feeder).
While the videos are helpful, abortion parents should contact their Cleft co-ordinator or team Speech and Language Therapist if feeding is problematic. It should also be said there are very specific cases such as Pierre Robin that will require direct consultation with the team.
Children and teens are this week either starting school, heading back to school, or moving to a new schoolÂ after the summer break. For some this can be a trying time, for others an exciting time, and that is just the parents we are talking about! But it can also be that way for the children, and a range of emotions can be experienced by one and all, not just the child born with a cleft. So what words of wisdom can we share with you as you send your child off to school for the new term, maybe even their first?
The following has been reproduced from the Derbyshire Times (UK, June 2001), courtesy of Jo Watson, baby Olivia’s mum.
How little Olivia has overcome problems to be an inspiration to others
Devastated Jo Watson’s world fell apart when she learned her unborn baby’s face was literally not joining together properly.
But in a few days’ time, the same child – born with a cleft lip and palate – is to be one of the prettiest stars of GMTV’s massive charity fund-raising drive, Get Up and Give.
TV bosses believe the way Jo and little Olivia have overcome their problems will act as an inspiration to others in the same situation. And charity chiefs at the Cleft Lip and Palate Association (CLAPA) hope that highlighting their brave plight will help a fund-raising drive.
According to today’s Sunday Independent (May 27, 2007), Ireland will become the first country in Europe to implement mandatory folic acid food fortification next year.
“The move will result in a 24 per cent drop in the number of babies born with neural tube defects such as spina bifida and anencephaly, doctors say. Ireland has one of the highest rates of neural tube defects in Europe with between 49 and 93 affected babies born here every year. Folic acid is a vitamin that, when taken prior to a woman becoming pregnant, can help prevent neural tube defects in babies.” (Quote)
A recently (May 2007) published ((SEE Norwegian study on folic acid supplements and risk of facial clefts)) Norwegian study on folic acid supplements and risk of facial clefts concluded that folic acid supplements during early pregnancy seem to reduce the risk of isolated cleft lip (with or without cleft palate) by about a third.