30th Anniversary Celebration Concert
Posted on November 24th, 2011
| February 16, 2012 | ||
| 8:00 pm | to | 10:00 pm |
The Cleft Lip and Palate Association of Ireland is celebrating its 30th anniversary in 2012!
To celebrate, we are having a special concert featuring;
The Garda Band,
with Special Guest, James Nelson of the Celtic Tenors.
Venue: St. Mary’s Catholic Church, Maynooth, Co. Kildare.
Thursday 16th February 2012 at 8:00pm (Doors open 7:30pm).
Please ensure you arrive in plenty of time to be seated.
Tickets: €15 each.
Contact us at e-mail info@cleft.ie, or telephone 087 1319803.
Tickets also on sale locally in Maynooth Bookshop, 68 Main Street, Maynooth. Many thanks to Ursula Byrne and the team.
Tags: anniversary, concert
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Christmas Cards - Place Your Order Now!
Posted on November 27th, 2011
10 Euro per pack of 10 cards (includes postage),
or
20 Euro per pack of 25 cards (includes postage).
These striking cards not only help raise funds for CLAPAI but also promote awareness of Cleft Lip and Palate.
Order enquiries: email info@cleft.ie or phone 087 1319803
Payment can be made by cheque, bank draft or postal order (payable to “Cleft Lip and Palate Association of Ireland”) and sent to:
Cleft Lip and Palate Association of Ireland.
C/o 36 Woodlands Avenue,
Dun Laoghaire,
County Dublin,
Ireland
Order now to ensure prompt delivery!
Tags: christmas cards
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Information Evening & AGM
Posted on October 17th, 2011
| November 16, 2011 | ||
| 7:30 pm | to | 10:00 pm |
Venue: Merrion Room, Red Cow Moran Hotel, Naas Road, Dublin 22. (see location map below).
Doors open from 7:30pm. Admission is free, all are welcome.
Topic: “A to Z of Cleft Surgery”.
We are delighted to have two eminent speakers from the Dublin Cleft Centre for this event:.
Mr David Orr, Consultant Plastic Surgeon, Our Ladies Hosptial Crumlin and Saint James’s Hospital.
Mr Gerry Kearns, Consultant Oral and Maxillofacial surgeon, Our Ladies Hospital Crumlin and Saint James’s Hospital.
With special guests Ms. Anne McGillivary and Ms. Laura Duggan, Cleft Co-Ordinators for Temple Street and Crumlin respectively
All babies born with cleft in Ireland will have either a lip and / or palate repair. Our speakers will cover these early surgeries. What happens next. Surgical options for improving speech. Surgery, in particular, bone grafting as part of the orthdontal treatment. Final surgeries for the young adult and options for older adults who may want to return for treatment. Each baby born with cleft will have their own unique treatment plan. Some may only ever have one operation, others may have more. The aim of this talk is to inform parents and other interested parties about the surgeries available, preparation, likely outcomes, how to balance surgery with other therapies. We will be looking to the floor for ideas on how to deal with soft food diet regime post surgery espically for teenagers - your input is welcome!
To help us plan numbers, please send a text or leave a message on 087 131 9803 or send an email to info@cleft.ie with your name and indicating numbers attending.
Location Map:
View Larger Map
Tags: annual general meeting, information evening
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22q11 Annual Conference
Posted on October 2nd, 2011
| October 22, 2011 |
Venue: Red Cow Moran Hotel, Naas Road, Dublin 22.
22q is a very rare condition that amongst other symptoms involves cleft palate. This conference on Saturday 22nd October is an opportunity to meet other families, healthcare professionals and experts and admission is free.
Programme.
09:30 a.m. Dr Alex Habel, Consultant Pediatrician to the North Thames Regional Cleft Unit based at Great Ormond Street Hospital NHS Trust, London.
10:10 a.m. Dr Debbie Sell, Head of Speech and Language Therapy Dept, Great Ormond Street Hospital for Children NHS Trust, London.
10:50 a.m. Prof Kieran Murphy, Royal College of Surgeons in Ireland, Structural & Functional Neuroimaging Research Update.
11:10 a.m. Dr Erik O’Hanlon, Royal College of Surgeons in Ireland & Anne Lawlor, 22q11 Ireland on Research Findings – Making Sense of Behaviour.
Tags: 22q11, conference
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Family Day 2011 Photos!
Posted on June 20th, 2011
What a great day we had! Despite a heavy early morning shower of rain, the day brightened up in every sense of the word, with plenty of sunshine, fun, food, chat, and revelry. As our Photo Gallery of the day will testify.
Right: Group Photo - Clock to view larger image.
The Association would like to extend a big thanks to Newbridge Scouts for their wonderful help on the day, and Coillte for the use of the beautiful Donadea Forest Park. But most of all we would like to thank all those who came on the day, children, teens, parents, grandparents, friends and trojan helpers, all who helped make it such a great success. Thanks a mill!
Tags: family day
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Feeding Videos
Posted on May 31st, 2011
There are some very good videos on feeding your baby available from the American Cleft Palate Foundation, and they have also very kindly sent us several DVDs.
The videos are evenly paced. They cover various options for feeding in bite size pieces. The videos that will be of particular interest to Irish parents are those on the Enfamil nurser from Mead Johnson (which has the same mechanism as the MAM), and the Haberman Feeder (more recently referred to as Special Needs feeder).
While the videos are helpful, parents should contact their Cleft co-ordinator or team Speech and Language Therapist if feeding is problematic. It should also be said there are very specific cases such as Pierre Robin that will require direct consultation with the team.
Tags: enfamil nurser, feeding, Haberman feeder, MAM
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