Information Evening – Monday 29th Mar 2021

The Cleft Lip and Palate Association of Ireland is delighted to invite you to our Spring 2021 Information Evening via Zoom.  Mr David Orr and Dr Catherine de Blacam, plastic surgeons with CHI Crumlin & St James’s Hospitals, will present …

Nothing about us without us; Patient-reported outcomes and research at the Dublin Cleft Centre.

David will discuss the outcome measures that have traditionally been recorded in cleft surgery and why the team are now trying to emphasise patient reported outcomes.

Catherine will explain specific patient reported outcome measures used in clinc. Catherine will also introduce two research projects that the team would like to involve patients/parents with .

The meeting will open at 7:45 to allow people to connect at leisure. Meeting starts 8pm.

  • Introductions & Update from CLAPAI 8:00
  • Presentation Mr Orr 8:10
  • Presentation Dr de Blacam 8:30
  • Questions & Feedback 8:50

Meeting End 9:00

Please send any questions you have in advance to info@cleft.ie

Please click here to register on Eventbrite

FAQs

How can I get the link to the event?

After you register you will receive an email confirmation that has the Zoom link. Click on the link to join the meeting. The meeting will open at 7:45 to allow people time to connect and chat before hand.

How much does the event cost ?

This is a free event, as always donations greatly appreciated through www.cleft.ie

How can I contact the organizer with any questions?

Text 087 131 9803 or 

Email info@cleft.ie 

Check www.cleft.ie for updates

Also check Cleft Lip & Palate Association of Ireland on Facebook 

UPDATE LOCKDOWN 3

The update for Lockdown 3 is that Primary surgeries – Lip & Palate – are going ahead as they did for previous lockdowns. Bonegraphs had almost caught up from the previous lockdowns. They are on hold but will be scheduled asap after the current lockdown. Adult surgeries are on hold. Face to face clinics are also on hold but a plan is being worked on to ‘catch up’ as soon as possible after lockdown. Cleft staff are still working and are still contactable. Please make contact with them if you have any worries or concerns, From experience we know how much emotional energy goes into appointments and moreso surgeries. The team are working hard to keep us and themselves safe so that we can all of us hit the ground running when we get the okay.

Bottles & BREXIT Update

Bottles & Teats have arrived.  The first batches are packed and ready to send to maternity hospitals.  You can see we are using An Post’s distinctive delivery boxes so that the bottles will be easily identifiable plus the boxes are a good size to store on a busy ward. 

At 9:52 on Christmas Eve we still do not have clarity on BREXIT plus COVID has meant no deliveries from UK anyway.  If it were not for the generousity of families fundraising for CLAPAI, it would not have been possible for us to secure the bottles.  A heartfelt thanks to you.  Thank you also to the Transition Year Students of Loreto Abbey Dalkey who did a massive job assembling the bottles and then packing bottles & teats into bags.  258 starter packs created out of 500+ bottles & 1,000+ teats.  Go raibh mile maith agaibh. 

Keep watching this site for updated bottle arrangements. Hospitals should email info@cleft.ie for delivery information. 

Bottles & BREXIT

CLAPAI will be receiving a delivery of 500 bottles on 16th December 2020.  It is planned to make Cleft Bottle Contingency packs available to maternity hospitals. Email info@cleft.ie for further information.