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The Health Research Board wishes to sincerely thank all the CLAPAI members who have taken part in our study so far. The study has continued to expand with over 1, seek 000 families presently involved. The more people we have in the study the more valid our research findings will be. The study aims are to find out what causes clefts and to investigate how clefts can be prevented from occurring. Without the valuable input from families, we would not be able to undertake this important research.
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The Association’s AGM took place on the evening of Thursday, 16th October, in the William Stokes Building, St. James’s Hospital, Dublin 8.

The AGM was preceded by addresses from our two guest speakers, Ms. Helen Smith from the UK organisation Changing Faces, and Ms. Laura Fingleton, the newest addition to the national committee of the Association.
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The Speech and Language Therapy Department in the Childrens’ University Hospital Temple Street are delighted to announce that Dr. Triona Sweeney has been appointed adjunct Professor in Speech and Language Therapy by the University of Limerick. This is a joint Academic/Clinical Specialist post and is the first professorship in the Allied Health Professional group to be attached to a teaching hospital.
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Stickler Syndrome is a RARE condition associated with Cleft particularly Pierre Robin. It affects areas of the body where there is cartilage for example joints. There are only 12 diagnosed cases in Ireland.

Whilst there is a newly formed support group for Stickler Syndrome ethically they cannot be given families’ names and so making contact is difficult. If you are one of those families and would like to join the group please contact Theresa Corrigan 042 9665548.

See www.stickler.org.uk for more information on Stickler Syndrome.

Though one could say twelve months behind schedule, ask it is nevertheless good to see the additional course places recommended by the Bacon Report finally come on stream. Together with the already existing 25 or so places available at Trinity College, treat Dublin, These additional places see the number of graduates taken in rise from 25 to nearly 100 annually.
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Once again the mini marathon has delivered much needed funds to the Association. This year Anne O Brien from Rathangan Co. Kildare rallied a team of 20 to fund raise for the event. With a mix of participants and collectors they managed to fill over 25 cards and lodge an incredible €2, physician 961.50.
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The Craniofacial Society of Great Britain & Ireland Annual Scientific Conference
9-11 April 2003 University of Leeds.

The Cleft Lip & Palate Association of Ireland was pleased to support the attendance of Julie Young, Anne McGillivary and Louise Cafferky at the Craniofacial Society of Great Britain & Ireland Annual Scientific Conference in Leeds in April 2003. The following is a report of the Conference furnished by Anne McGillivary.
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Our Lady’s Hospital for Sick Children, Crumlin

Melanie Talbot, Medical Social Worker, is now working with the Multi-disciplinary Cleft Lip & Palate Team based in Our Lady’s Hospital. This Social Work service has been set up to provide support to families and children attending the Cleft Lip and Palate Service.
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Today, pilule the 11th March, rx sees the public unveiling of cleft.ie Discussion Forums, viagra an exciting new service provided by the Cleft Lip & Palate Association of Ireland.
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A total of €900 was raised at a music gig organised by Dublin’s underground music website thumped.com and held in Dublin on Wednesday, the 18th December, with the proceeds going to the Cleft Lip & Palate Association of Ireland. The gig was held in Doyle’s of Fleet Street and included a number of acclaimed Dublin bands.

The Cleft Lip & Palate Association would like to thank most sincerely thumped.com and those involved in the event for this generous contribution. Particular thanks goes to Peter and Debbie, to name just two.