Tag: 22q11

No comments

22q11 Annual Conference

  By Events, Other News

Venue: Red Cow Moran Hotel, Naas Road, Dublin 22.

22q is a very rare condition that amongst other symptoms involves cleft palate. This conference on Saturday 22nd October is an opportunity to meet other families, healthcare professionals and experts and admission is free.

Programme.

09:30 a.m. Dr Alex Habel, Consultant Pediatrician to the North Thames Regional Cleft Unit based at Great Ormond Street Hospital NHS Trust, London.

10:10 a.m. Dr Debbie Sell, Head of Speech and Language Therapy Dept, Great Ormond Street Hospital for Children NHS Trust, London.

10:50 a.m. Prof Kieran Murphy, Royal College of Surgeons in Ireland, Structural & Functional Neuroimaging Research Update.

11:10 a.m. Dr Erik O’Hanlon, Royal College of Surgeons in Ireland & Anne Lawlor, 22q11 Ireland on Research Findings – Making Sense of Behaviour.

Continue reading


Print pagePDF page
No comments

Study Morning on Speech and Language Difficulties – 22q11 Ireland

  By Events

Venue: The School of Nursing and Midwifery Studies, Trinity College, 24 D’Olier Street, Dublin.

22q11 Ireland22q11 Ireland invites you to a Study Morning on Speech and Language difficulties specific to 22q11.2 Deletion / VCFS / DiGeorge syndrome.

Our speakers on the day are USA VCFS experts:

Speech Pathologist and Outomes Studies Coordinator: Eileen Marrinan, M.S., M.P.H.
A true expert in the field of speech disorders associated with cleft palate in general and VCFS specifically, she has been the primary resource for guiding the treatment of speech disorders in VCFS and managing care of patients http://onlinepharmacies247.com/paxil_generic.html through the Distance Care program. She is also an expert at multiview videofluoroscopy, a state-of-the-art diagnostic procedure first developed at Upstate Medical University.

Eileen will speak on “The Nature and Treatment of Speech Disorders Associated with Velo-Cardio-Facial Syndrome”.

Doctor Sherard Tatum.
Doctor Tatum has dedicated his career to the care and research of cleft and craniofacial disorders. He is Board Certified in both Otolaryngology and Facial Plastic and Reconstructive Surgery.

Scott will speak on “Surgical Managment of Velopharyngeal Insufficiency in Velo-Cardio-Facial Syndrome”.

RSVP to: twenty.two.q@gmail.com. Telephone: 087 7412856.


Print pagePDF page