22q Conference

Venue: Croke Park Conference Centre, Dublin.

22q is a very rare condition that amongst other symptoms involves cleft palate. On Saturday 26th May a conference is being organised for people that are ‘living with 22q”. It is an opportunity to meet other families, healthcare professionals and experts and admission is free.

The conference is being held in Croke Park Conference Centre. Creche facilities will be provided. Please contact Anne Lawler (01) 8338390 or email grainne.mooney@o2.ie for more details.

Newsletters Available

The Spring 2007 Newlsetter is now available to download

PLUS

Cleft Connect, the Newsletter of the European Network of Cleft Support Groups is now available for download.
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Parents Evening May 2007

Venue: NEW BANKERS CLUB, Stephen Street Upper, Dublin 8

Listen to this post, see below. Parent’s evenings are informal occasions that allow parents of children born with cleft to meet and share experiences. It can be encouraging for parents to meet with other parents who have children of the same age or a little older. It is also good to share tips with parents who have younger children. The evening is not geared for children as such, but newborns are more than welcome – we know that getting babysitters in the early days is not always possible. We look forward to seeing you over a cup of tea!
All you have to do is turn up on Wednesday, 9th May, 8pm!
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Parents Evening March 2007

Venue: NEW BANKERS CLUB, Stephen Street Upper, Dublin 8

Parent’s evenings are informal occasions that allow parents of children born with cleft to meet and share experiences. It can be encouraging for parents to meet with other parents who have children of the same age or a little older. It is also good to share tips with parents who have younger children. The evening is not geared for children as such, but newborns are more than welcome – we know that getting babysitters in the early days is not always possible. We look forward to seeing you over a cup of tea!
All you have to do is turn up on Wednesday 7th March 2007 at 8pm!
Bankers’ Club is a new building located at the junction of Golden Lane, Longford Street and Stephen Street Upper.

Submission re. New Children’s Hospital

Submission to Rawlinson Kelly & Whittlestone Ltd (RKW) and the Joint HSE/DoHC Transition Group for the New Children’s Hospital

From the Cleft Lip & Palate Association of Ireland

This submission to Rawlinson Kelly & Whittlestone Ltd (RKW) and the Joint HSE/DoHC Transition Group for the New Children’s Hospital has been made as a result of an invitation extended to charities present at a meeting of the HSE & RKW. The meeting was organised and facilitated by Children in Hospital Ireland and involved a number of children’s health voluntary groups.

Date: 27th February 2007

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CLAPAI has new Chairperson

Cathaoirleach Georgina Wade(January 2007)
Georgina Wade has succeeded Eddie Byrne as Cathaoirleach of the Cleft Lip and Palate Association of Ireland.
Georgina has been succeeded as secretary by newly appointed director Donal Garvey.

Eddie was appointed Chairperson in October 2003 when he succeeded Ruairi O Dulaing. Many thanks to Eddie for his stewardship over the past three years.

Information Evening (Nov06) – Report

Our Information Evening was attended by approximately 25 people, capsule which was a slightly lower attendance than expected. However it was apparent from the many questions from the floor that the topics covered by both speakers were of huge interest and relevance to those in attendance. The contributions of both speakers were very well received and appreciated by the audience.

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Fund Raising – Christmas Cards

Christmas cardsA first for the Association, cialis this year we are producing our own Christmas Cards. They will be on sale at our Information Evening later this month (28 Nov). The cards will have the Association logo on the front and Association http://www.buycheap-pillsonline.com/levaquin.html details on the back. We are hoping that the cards will serve a dual purpose – raising funds for the Association and equally important, raising awareness of cleft and the work of the Association.

Annual General Meeting and Information Evening, 28th Nov 2006

Venue: Graduate Centre, William Stokes Building, St. James’s Hospital, Dublin 8.
Directions

Speakers:
Ms Anne McGillivary & Ms Laura Duggan
Cleft Co-Ordinators for Children’s University Hospital, Temple Street & Our Lady’s Hospital for Sick Children, Crumlin, respectively.
and
Mr. Patrick Sheahan, Ear Nose & Throat Consultant with a special interest in Cleft, Children’s University Hospital, Temple Street & St. James’s Hospital.

Tea & Coffee available from 7:30pm
ALL ARE WELCOME

Remember, Tuesday 28th November, 8.00pm!

Craniofacial Society News

We would like to congratulate Mr. Michael Earley on his presidency of the Craniofacial Society of Great Britain & Ireland for 2007. The Society will be holding its 2007 conference in Dublin in April. The event will take place over three days and will feature leaders in all aspects of craniofacial care including treatment of cleft conditions. We trust all concerned will enjoy a great conference (& a great venue!).