30th Anniversary Celebration Concert

The Cleft Lip and Palate Association of Ireland is celebrating its 30th anniversary in 2012!

To celebrate, cialis we are having a special concert featuring;

The Garda Band, order

James Nelsonwith Special Guest, cialis James Nelson of the Celtic Tenors.

Venue: St. Mary’s Catholic Church, Maynooth, Co. Kildare.
Thursday 16th February 2012 at 8:00pm (Doors open 7:30pm).
Please ensure you arrive in plenty of time to be seated.

Tickets: €15 each.

Contact us at e-mail info@cleft.ie, or telephone 087 1319803.

Tickets also on sale locally in Maynooth Bookshop, 68 Main Street, Maynooth. Many thanks to Ursula Byrne and the team.


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Information Evening & AGM

Venue: Merrion Room, Red Cow Moran Hotel, Naas Road, Dublin 22. (see location map below).

Doors open from 7:30pm. Admission is free, all are welcome.

Topic: “A to Z of Cleft Surgery”.
We are delighted to have two eminent speakers from the Dublin Cleft Centre for this event:.

Mr David Orr, Consultant Plastic Surgeon, Our Ladies Hosptial Crumlin and Saint James’s Hospital.
Mr Gerry Kearns, Consultant Oral and Maxillofacial surgeon, Our Ladies Hospital Crumlin and Saint James’s Hospital.

With special guests Ms. Anne McGillivary and Ms. Laura Duggan, Cleft Co-Ordinators for Temple Street and Crumlin respectively

All babies born with cleft in Ireland will have either a lip and / or palate repair. Our speakers will cover these early surgeries. What happens next. Surgical options for improving speech. Surgery, in particular, bone grafting as part of the orthdontal treatment. Final surgeries for the young adult and options for older adults who may want to return for treatment. Each baby born with cleft will have their own unique treatment plan. Some may only ever have one operation, others may have more. The aim of this talk is to inform parents and other interested parties about the surgeries available, preparation, likely outcomes, how to balance surgery with other therapies. We will be looking to the floor for ideas on how to deal with soft food diet regime post surgery espically for teenagers – your input is welcome!

To help us plan numbers, please send a text or leave a message on 087 131 9803 or send an email to info@cleft.ie with your name and indicating numbers attending.

Location Map:

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22q11 Annual Conference

Venue: Red Cow Moran Hotel, Naas Road, Dublin 22.

22q is a very rare condition that amongst other symptoms involves cleft palate. This conference on Saturday 22nd October is an opportunity to meet other families, healthcare professionals and experts and admission is free.

Programme.

09:30 a.m. Dr Alex Habel, Consultant Pediatrician to the North Thames Regional Cleft Unit based at Great Ormond Street Hospital NHS Trust, London.

10:10 a.m. Dr Debbie Sell, Head of Speech and Language Therapy Dept, Great Ormond Street Hospital for Children NHS Trust, London.

10:50 a.m. Prof Kieran Murphy, Royal College of Surgeons in Ireland, Structural & Functional Neuroimaging Research Update.

11:10 a.m. Dr Erik O’Hanlon, Royal College of Surgeons in Ireland & Anne Lawlor, 22q11 Ireland on Research Findings – Making Sense of Behaviour.

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Family Fun Day, 18th June 2011

Location: Donadea Forest Park, County Kildare. (follow link for location map)

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UPDATE, 14 June: Confirmations sent to everybody that has booked. If you have sent a booking and have not received a confirmation please contact the Association at 087 1319803 or email info@cleft.ie

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The Cleft Lip and Palate Association of Ireland, in conjunction with the Newbridge Scouts, are delighted to announce that its seventh family fun day will be held on Saturday, 18th June. This year we are planning to spend the day at Donadea Forest Park, a little known jewel in County Kildare. It is located 8 kilometers south of Kilcock on the R407 to Naas and is also accessible via the R407 about 13 kilometers north of Naas on the Kilcock Road.

Below: Family Day, June 2009.
Group Photo, Family Day, 13 June 2009

The day will start at 10am with registration. At 10:30 we will break up into groups for age appropriate activities – buggy walk around the lake for under 6’s, venture challenge for teenagers+, orienteering for ages 6 to 12 and grown-ups, and a sedentary sit down at base camp for anybody http://buyonlinegenericmeds.com else!

We will have a picnic (in the marquee if needs be) around 12:30. Families should bring a light lunch to supplement a barbecue which is being organised. Tea and coffee can be purchased from the Park’s coffee shop, or bring a flask. The Scouts are organising a range of activities for the afternoon. As usual dress for all weathers. We will have our annual raffle too which has proved to be a good success in previous years. Let us know if you can supply a raffle prize.

Please find attached booking form and information for this year’s Family Fun Day. Please complete and post to CLAPAI, c/o 4 Wolverton Glen, Dalkey, County Dublin, or complete a softcopy and send to info@cleft.ie. Closing date for replies is Friday, 10th June.

It is an ideal opportunity to meet up, chat and have fun. I’d like to take this opportunity to thank Aine Doyle, committee member and Paul Murphy Newbridge Scouts for all their work in organising this year’s event.
(Georgina Wade)

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Women’s Mini Marathon – Fundraising

Mini-marathon time is fast approaching! The Association relies heavily on donations and sponsorship from the mini-marathon, dosage which finances the majority of our activities.

Flora Mini-MarathonThe Flora Women’s 10k Mini-marathon is on Bank Holiday Monday, viagra 6th June.

As ever, viagra 40mg we need YOUR help. Sponsorship cards and T-shirts can be arranged by contacting Anne Gilsenan at 087 131 9803, or annegilsenan@cleft.ie. Anne requires name, home address, (email address would be great too), home number, mobile number and number of cards and t-shirts required.

You can register online at www.florawomensminimarathon.ie.
Closing Date: 27th April 2011, or when maximum number of entries is reached.
Age Limit: Participants must be at least 14 on Mini Marathon Day.

Good Luck Ladies!


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Informal Parents’ Evening, 9th March 2011

Are you the parent of a child born with a cleft?  Are you new to cleft treatment? Is your child starting a new phase of treatment?

If the answer to any of these is YES, please join us for ‘Parents Evening’, Wednesday, 9th March, in the Aisling Hotel.  We will be there from 7:30pm to about 10.00pm.  Drop in when you can.

Parents’ evenings are informal occasions that allow parents of children born with cleft to meet and share experiences. It can be encouraging for parents to meet with other parents who have children of the same age or a little older.  It is also good to share tips with parents who have younger children.  The evening is not geared for children as such, but newborns are more than welcome – we know that getting babysitters in the early days is not always possible.  We look forward to seeing you over a cup of tea!

All you have to do is turn up on the night!

Venue:
The Best Western Aisling Hotel is in Parkgate Street in Dublin.  It is on the Red Line Luas (Hueston stop) and is in view of Huestson station for mainline rail.  Parking is available in the hotel grounds at €2.00 per hour.  Drivers need to approach the hotel from Wolfe Tone Quay  – there is a left turn approximately 100 yards down the quay; it is for local access including the hotel. (see map below)

Association Contact Details

Email: info@cleft.ie

Facebook: http://www.facebook.com/group.php?gid=2424256199

Phone (087) 1319803

It would be helpful if you could contact us in advance so we can ensure we have the appropriate amount of room booked  – many thanks.   Admission is free.

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Family Activity Day, 19th June 2010

Location: Causey Farm, sale Co. Meath.

The Cleft Lip and Palate Association of Ireland is delighted to announce that its sixth family fun day will be held on Saturday, cheap 19th June.  This year we are planning to spend the day at Causey farm, which offers both indoor and outdoor activites.  It is located between Trim and Navan, County Meath (see www.causey.ie).

Below: Family Day, June 2009.
Group Photo, Family Day, 13 June 2009

The day will start at 10 a.m. with registration.  At 10:30 we will break up into groups and take a tour of the farm. Buggies can get around but be prepared for a bit of rough terrain in places. The highlight of the morning is likely to be our ‘bog jumping’ event.  Our teenage and young adult group will lead the way and show us just how much bog they can soak up!  Everybody will get an opportunity to try this out, even the grown ups.  It is important to bring a change of clothes, a black bag for the wet stuff and some wipes to clear off at least some of the bog before lunch!

After the tour of the farm we will have a picnic http://www.buydiazepamsite.com (indoor if needed).  Families should bring their own food but we will have tea and coffee readily available and a few goodies too!  We will have some fun and activities after lunch including our annual raffle, which has proved to be a good success in the last number of years.

As usual there will be plenty of time to chat and mingle throughout the day.  Please check here for updates. Regarding costs, there is no charge for attending the event but we are hoping to make the event self financing by runnig the raffle and taking donations on the day. For security reasons we must have a completed booking form if you want to come along – see below. We look forward to seeing you for another great family day, hail or shine!

BOOKING FORM

Please complete the attached booking form and either post hard copy to CLAPAI, c/o 4 Wolverton Glen Dalkey, Co. Dublin, or send soft copy to info@cleft.ie.

Closing date for replies is Wednesday, 16th June. If for any reason you do not get a confirmation of your booking from us, please contact us at 087 131 9803

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Donegal Meeting

We are delighted to announce that we will be having our first ever Parents’ Evening in the Mount Errigal Hotel, Letterkenny, County Donegal, on Thursday, 29th April, at 8pm.

This is an informal evening for parents, where they will have the opportunity to find out more about the Association and hear other parents’ experiences, while sharing their own over a cup of tea or coffee.

We would appreciate an e-mail (info@cleft.ie), text or call (087 1319803) in advance so that we have an idea of likely numbers attending.

Admission is free, so please do come along.


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Flora Women’s Mini Marathon 2010 – Fundraising

Mini-marathon times is fast approaching! The Association relies heavily on donations and sponsorship from the mini-marathon, viagra which finances the majority of our activities.

Flora Mini-MarathonThe Flora Women’s 10k Mini-marathon is on Bank Holiday Monday, price 7th June.

As ever, pilule we need YOUR help. Sponsorship cards and T-shirts can be arranged by contacting Anne Gilsenan at 087 1319803, or annegilsenan@cleft.ie. Anne requires name, home address, (email address would be great too), home number, mobile number and number of cards and t-shirts required.

The first Entry Form is in the Evening Herald on Wednesday 3rd March 2010, or register online at www.florawomensminimarathon.ie.
Closing Date: 27th April 2010, or when maximum number of entries is reached.
Age Limit: Participants must be at least 14 on Mini Marathon Day.

Good Luck Ladies!


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Annual General Meeting and Information Evening

The Cleft Lip and Palate Association of Ireland is holding its Annual General Meeting and an Information Evening on Thursday, 15th April, 2010, at 8pm. Doors open from 7:15pm.

Venue: The Louis Fitzgerald Hotel (near Joel’s), Newland’s Cross, Naas Road, Dublin 22. (Location Map below).

The Information Evening theme is “SPEECH AND HEARING“.

Following our successful event last year, ‘Dental Care All the Way’, this year we are concentrating on Speech and Hearing. We will be looking at each area separately and where they overlap. We are delighted to have three excellent speakers for the event.

  • Nicole Prenderville, Senior Speech and Language Therapist, Our Lady’s Children’s Hospital,  Crumlin.
  • Rob Wormald, Senior Ear Nose and Throat Registrar, Children’s University Hospital, Temple Street.
  • Julianne Gillen, Community Resource and Access Officer, DeafHear.ie

The information evening is aimed at parents, but will also be of interest to adults born with cleft or medical personnel working in this area.  Carers or close relations are also welcome.  While admission is free, we would appreciate an email, text or call in advance, so that we have an idea of likely numbers attending.

Location Map:
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