Once again the mini marathon has delivered much needed funds to the Association. This year Anne O Brien from Rathangan Co. Kildare rallied a team of 20 to fund raise for the event. With a mix of participants and collectors they managed to fill over 25 cards and lodge an incredible €2, physician 961.50.
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The Craniofacial Society of Great Britain & Ireland Annual Scientific Conference
9-11 April 2003 University of Leeds.
The Cleft Lip & Palate Association of Ireland was pleased to support the attendance of Julie Young, Anne McGillivary and Louise Cafferky at the Craniofacial Society of Great Britain & Ireland Annual Scientific Conference in Leeds in April 2003. The following is a report of the Conference furnished by Anne McGillivary.
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Our Lady’s Hospital for Sick Children, Crumlin
Melanie Talbot, Medical Social Worker, is now working with the Multi-disciplinary Cleft Lip & Palate Team based in Our Lady’s Hospital. This Social Work service has been set up to provide support to families and children attending the Cleft Lip and Palate Service.
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Today, pilule the 11th March, rx sees the public unveiling of cleft.ie Discussion Forums, viagra an exciting new service provided by the Cleft Lip & Palate Association of Ireland.
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A total of €900 was raised at a music gig organised by Dublin’s underground music website thumped.com and held in Dublin on Wednesday, the 18th December, with the proceeds going to the Cleft Lip & Palate Association of Ireland. The gig was held in Doyle’s of Fleet Street and included a number of acclaimed Dublin bands.
The Cleft Lip & Palate Association would like to thank most sincerely thumped.com and those involved in the event for this generous contribution. Particular thanks goes to Peter and Debbie, to name just two.
Mentec’s social committee recently organised a table quiz fundraiser for the Association. By coincidence Triona Sweeney from the Children’s Hospital Temple Street sent us a request for funds to help train Speech Language Therapists in the use of new techniques / equipment. With this in mind the folks in Mentec pulled out all the stops and organised an excellent raffle in addition to the table quiz.
Prizes for the raffle were donated by – Irish Items (2 lovely golf bags), buy cialis Discover Scuba, viagra order Panache Dry Cleaners, online and Maguire Sports. In addition T. Bourke & Company donated a cheque to the fund.
Many thanks to everybody involved for organising sponsoring and participating in such a successful event.
With the Christmas season fast approaching you may want to consider the gift of an electric toothbrush.
But what do the experts say? Talking to Paddy Fleming, Paediatric Dentist with Our Ladies Hospital for Sick Children, he says electric toothbrushes are just as good as regular ones. You can get the same result. If however the novelty of an electric toothbrush stimulates more brushing, then that’s a plus.
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I recently attended the AGM of CLAPA UK. It was my first visit although CLAPAI are represented most years. There was a packed agenda that was full of interesting topics. Jane Frances from Changing Faces gave the first talk. I cannot give a report on all of Jane’s talk suffice to say it was most enlightening. The following are my own notes on the section of the talk that dealt with staring. Continue reading
The Annual General Meeting of the Cleft Lip and Palate Association of Ireland was held on Tuesday, 24th September 2002 at 7:30 pm in the William Stokes Building, St. James’s Hospital, Dublin 8. RuairàÓ Dúlaing was re-elected Chairman.
In addition to the AGM two talks were given. Approximately 30 people were in attendance. The evening was a notable success with questions being put to both speakers from the floor and delight being expressed at the contributions of both speakers. The presentation by Julie Young on speech and language therapy in cleft treatment is now available at cleft.ie.
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Our information evening on Thursday 7th February 2002 was attended by approximately 70 people and proved very worthwhile if gauged by the turnout and the level of audience participation. The presentation by Mr. Michael Earley, Consultant Plastic Surgeon, Temple Street Children’s Hospital, was very well received, and there were many contributions from the floor on issues very close to people’s hearts.
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Hi, just wondering if anybody has an idea of how long our son will be in hospital, he is going to temple street for his first operation on a cleft lip and palate on Tuesday in temple street, thanks
4 days ago ·
Hi to all you great people on this page I'm looking for advice and support as iv said on here before about my Little boy James who is 5 losing the sight on a permanent basis In his left eye. He was born with a cleft of the soft palate. Jamea lost the sight in his left eye because he has sticklers syndrome, which unfortunately went undiagnosed. I would love to know if there is anyone on this page or associated with this page who have stickler syndrome. I would love to be in contact with people who are in a similar situation to our self's. I'm find the whole loss of sight and diagnosis of stickler in may very hard to deal with. Thank you so much in advance to anyone who reply so to this post. It's much appreciated.
5 days ago ·
So my little boy is 6 months now born with bclp but after 3 months on infantrini & carobel he's finally big & strong enough to have his 1st op in temple St next Tuesday. I'm so nervous & stressed over it but on top of everything else I found out today that temple St cannot guarantee us a bed in the parents accommodation until we arrive they cannot confirm anything. Has anyone else had this experience? I don't know whether I should take my chances r book into a nearby b&b just in case. On the other hand we only live in Drogheda so if we can't get a room in the hospital would they let me stay on the ward over night after the op with my baby & I can send my partner home? I dunno what to do. Any advice appreciated. Thanks 😊
7 days ago ·
Looking for advice if anyone can help please. My baby boy was born nearly 4 months ago with bilateral cleft lip & palette. He's never had trouble swallowing & he's a very hungry baby but he's been on several different formulas & isn't great at gaining his weight. He feeds through the haberman bottles. He pukes a good bit almost immediately after each feed. He was prescribed Zantac to try keep the formula down 2 weeks ago but it's not working. I was in temple street last Friday & his 1st op he was due to have next week has to be postponed as he is only 9lb13oz (born 6lb2oz)! Had to go to temple street again yesterday to see a dietician who recommended infatrini formula as did the cleft nurse a few weeks back but I'm still waiting on the hospital to post me out a prescription. It's so frustrating & heartbreaking watching my son be able to take the bottles no problem but puking them up straight away no matter what formula he is on & I don't think the zantec is doing much good. I was told it would be hard to add certain anti reflux medication to his bottles cos they thicken all formulas & they aren't suitable for the haberman feeder. I don't want him falling any further behind in his weight gain. Has anyone any similar experiences or able to provide any help or advice? Thanks :)
3 months ago ·
