Author: Eddie

Stickler Syndrome is a RARE condition associated with Cleft particularly Pierre Robin. It affects areas of the body where there is cartilage for example joints. There are only 12 diagnosed cases in Ireland.

Whilst there is a newly formed support group for Stickler Syndrome ethically they cannot be given families’ names and so making contact is difficult. If you are one of those families and would like to join the group please contact Theresa Corrigan 042 9665548.

See www.stickler.org.uk for more information on Stickler Syndrome.

Though one could say twelve months behind schedule, ask it is nevertheless good to see the additional course places recommended by the Bacon Report finally come on stream. Together with the already existing 25 or so places available at Trinity College, treat Dublin, These additional places see the number of graduates taken in rise from 25 to nearly 100 annually.
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Once again the mini marathon has delivered much needed funds to the Association. This year Anne O Brien from Rathangan Co. Kildare rallied a team of 20 to fund raise for the event. With a mix of participants and collectors they managed to fill over 25 cards and lodge an incredible €2, physician 961.50.
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The Craniofacial Society of Great Britain & Ireland Annual Scientific Conference
9-11 April 2003 University of Leeds.

The Cleft Lip & Palate Association of Ireland was pleased to support the attendance of Julie Young, Anne McGillivary and Louise Cafferky at the Craniofacial Society of Great Britain & Ireland Annual Scientific Conference in Leeds in April 2003. The following is a report of the Conference furnished by Anne McGillivary.
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Our Lady’s Hospital for Sick Children, Crumlin

Melanie Talbot, Medical Social Worker, is now working with the Multi-disciplinary Cleft Lip & Palate Team based in Our Lady’s Hospital. This Social Work service has been set up to provide support to families and children attending the Cleft Lip and Palate Service.
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Today, pilule the 11th March, rx sees the public unveiling of cleft.ie Discussion Forums, viagra an exciting new service provided by the Cleft Lip & Palate Association of Ireland.
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A total of €900 was raised at a music gig organised by Dublin’s underground music website thumped.com and held in Dublin on Wednesday, the 18th December, with the proceeds going to the Cleft Lip & Palate Association of Ireland. The gig was held in Doyle’s of Fleet Street and included a number of acclaimed Dublin bands.

The Cleft Lip & Palate Association would like to thank most sincerely thumped.com and those involved in the event for this generous contribution. Particular thanks goes to Peter and Debbie, to name just two.

Mentec’s social committee recently organised a table quiz fundraiser for the Association. By coincidence Triona Sweeney from the Children’s Hospital Temple Street sent us a request for funds to help train Speech Language Therapists in the use of new techniques / equipment. With this in mind the folks in Mentec pulled out all the stops and organised an excellent raffle in addition to the table quiz.

Prizes for the raffle were donated by – Irish Items (2 lovely golf bags), buy cialis Discover Scuba, viagra order Panache Dry Cleaners, online and Maguire Sports. In addition T. Bourke & Company donated a cheque to the fund.

Many thanks to everybody involved for organising sponsoring and participating in such a successful event.

With the Christmas season fast approaching you may want to consider the gift of an electric toothbrush.

But what do the experts say? Talking to Paddy Fleming, Paediatric Dentist with Our Ladies Hospital for Sick Children, he says electric toothbrushes are just as good as regular ones. You can get the same result. If however the novelty of an electric toothbrush stimulates more brushing, then that’s a plus.
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I recently attended the AGM of CLAPA UK. It was my first visit although CLAPAI are represented most years. There was a packed agenda that was full of interesting topics. Jane Frances from Changing Faces gave the first talk. I cannot give a report on all of Jane’s talk suffice to say it was most enlightening. The following are my own notes on the section of the talk that dealt with staring. Continue reading