Disney’s The Lone Ranger – Shame on You

The Cleft Lip and Palate Association of Ireland (CLAPAI) would advise parents to be prepared for the forthcoming release of the Disney movie “The Lone Ranger”, due out on the 9th August, certificate 12a.

Disney describes the villain of the movie (Cavendish) as “a ruthless outlaw whose terribly scarred face is a perfect reflection of the bottomless pit that passes for his soul”.

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Family Day, 22 June, a Great Success!

What a great day everybody! Hope you all managed to clean up after the bog. Thank you to the committee for making the day happen, drugs thank you to the fundraisers and everybody who gives their time for the Association. Well done to Causey Farm for looking after us so well. looking forward to seeing you again next year, already Áine is making plans.

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Family Day, Saturday 22nd June 2013

clinic CLAPAI Family Day, nurse June 2010 by CLAPAI, on Flickr” href=”http://www.flickr.com/photos/clapai/4730998001/”>Group Photo, CLAPAI Family Day, June 2010The Cleft Lip and Palate Association of Ireland is delighted to announce that its ninth family fun day will be held on Saturday, 22nd June. This year we are returning to Causey Farm, which offers outdoor activities. It is located between Trim and Navan, Co. Meath. Continue reading

Charity Night Fundraiser

A charity night fundraiser is being held in aid of the Cleft Lip and Palate Association of Ireland in St. Maur’s GAA Club, Rush, County Dublin, on Friday the 5th April. Doors open at 8.30pm. There will be both a live band (The Hitmen) and a DJ present.

For tickets please contact either
Eoin Boyle on 086 8599273, or
Colm Leonard on 086 8092581

Tickets cost €10, and this is a ticket-only event.

Fundraising Event, Limerick City, 5th May 2013

Re. Marathon, marathon-relay, half marathon and 6 mile run on 5th May 2013 in and around Limerick city.

If participants could fundraise on behalf of the Cleft Lip and Palate Association of Ireland your efforts can go a long way towards assisting
(1) the funding, purchase, installation and fit out of the children’s and adolescents’ waiting room in the National Maxillofacial Centre in St James’s Hospital in Dublin, and
(2) the provision of maternity packs and emergency bottle supplies.

We would be most grateful for your efforts towards raising funds for these worthy causes!

You can email me, Anne Gilsenan (Treasurer), at clapai.treasurer@gmail.com, and  I will get back in touch with you to organise t-shirts and sponsorship cards etc.

Death of Professor John Scott, Distinguished Researcher

The death has occurred of Professor John Scott of the School of Biochemistry and Immunology, Trinity College, Dublin. Professor Scott contributed greatly throughout his distinguished career towards efforts to identify the cause(s) of orofacial clefts and neural tube defects (NTDs).

The Cleft Lip and Palate Association of Ireland extends its deepest sympathy to the family of Professor Scott.

The genetics and biochemistry of orofacial clefts was a particular area of interest of Professor Scott’s. As part of an international collaborative research team, Professor Scott, together with other Irish researchers, provided data for a set of Irish affected families that confirmed previously unidentified genes associated with cleft lip in children. The results of the study were published in the leading international science journal, Nature Genetics, in May 2010. The Cleft Lip and Palate Association of Ireland was instrumental in the gathering of the large sample base that made this research possible.

The funeral mass will be held at 11.30am on Wednesday 2nd January, in the Carmelite Church, Whitefriar Street, Dublin. Full details, including a wonderful tribute by his daughter Rachel, available on rip.ie.

May he rest in peace.

AGM and Parents’ Evening, 4 December 2012

Notice is hereby given of the 2013 Annual General Meeting (AGM) of the Cleft Lip and Palate Association of Ireland, sick to be held on Tuesday, there 4th December, at 8.00pm,  at Bewleys Hotel, Newlands Cross, Dublin. The AGM will be followed by an informal get together of parents and carers.

Bewleys Hotel – Location.

Well Done Rathangan Runners!

Rathangan Runners

The “Rathangan Runners” who participated in the 2012 Women’s Mini Marathon in order to raise much needed funds on behalf of the Association. Many thanks to Anne O’Brien and her fellow runners (including her son Joe, and seen here in front) for their unending support. (click image to see a larger version.)

Let us also add a big congratulations to Michael Sutton who recently completed the Liverpool Tunnel run with all sponsorship going to our Association. Well done Michael and thank you!!!

Family Day 2012 – Saturday 16th June

Location: Kippure Estate, Wicklow, near Blessington (20 mins from M50/Tallaght junction).

Our 8th Family Day promises to be another action-packed occasion. Kippure Estate Adventure will be running activities for all ages. For children there are bouncy castles, bouncy slide, face painting, balloon animals and a play area. For older children and adventurous ‘grown ups’ there is archery, climbing with helmets and harnesses, abseiling and a treasure hunt. In an estate of 240 acres, there are plenty of walks too.

We must have final numbers by Wednesday 6th June. Forward family details to info@cleft.ie (family name, address, contact number / email, names of those attending, children’s ages, special needs, transport help).Alternatively, download booking form as follows:

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Registration from 9.30 to 10.00am. There is a tuck shop on site selling tea and coffee. As before, bring your own picnic.

We are asking for a donation of €20 per family to help cover costs (payable on the day). We are also looking for prizes for our raffle.

Please pass on the details to families you know who may not be on our mailing list. Georgina

Parent Information Pack

If you would like one of our Parent Information Packs please contact Sinéad Ní Allúin at 086 8438474 or email nialluin@cleft.ie

Information Pack