It is with deep regret that we learned of the sudden passing of Anne McGillivary, Temple Street Cleft Coordinator. Anne has helped countless families over many years. Her cheer, her work ethic, her vision and compassion will be missed by all who worked with her and all who met her through cleft services.
Anne had a long association with CLAPAI and in recent years was a valuable and dedicated member of our committee. We are sure that Anne’s influence will extend for generations. CLAPAI extends its condolences to Anne’s family, friends and colleagues.
Anne, we will miss you dearly, RIP.
UPDATE- Due to the upcoming weather event in Dublin our information evening scheduled for 1 March has been postponed until 14 March 2018.
The Cleft Lip and Palate Association of Ireland (CLAPAI) is hosting an information evening for adults attending cleft services in St James’ Hospital on Thursday, 14 March 2018 at 19:30 in the Clayton Hotel near Liffey Valley Shopping Centre.
The focus for the evening will be on dental work and the experience of adults who have returned to the service or require the service.
Please RSVP on 0871319803 or firstname.lastname@example.org.
Please note that admission is free and tea and coffee will be served.
The Cleft Lip and Palate Association of Ireland AGM & Information Evening 2017
Thursday 30th November at 8pm, (Doors open from 7.30pm) Clarion Hotel Dublin, near Liffey Valley.
The themes this year are surgery and braces and our speakers are as follows:
1. A Parent’s Guide to Cleft Surgery by Mr David Orr, Consultant Cleft Surgeon, Our Lady’s Hospital, Crumlin & St James’ Hospital.
2. My Experience With Braces by Molly Wade, Lead Singer with The Enzymes.
These will be followed by our AGM, Tea/Coffee & General Chat.
The information evening is an ideal time to meet with other parents, adults born with Cleft and medical professionals. Please come along and enjoy a cup of tea/coffee with us all.
To help us plan r.s.v.p. to email@example.com. Admission is free.
CLAPAI is hosting an informal meeting on Tuesday 16th May in the Louis Fitzgerald Hotel, on the Naas Road. (Link attached. below).
The doors will be open at 7:30 with tea and coffee served. At 8pm we are glad to have parent and committee member Aine Doyle give us a session on ‘First Aid for Toddlers’, Aine is a qualified Emergency First Responder as well as a qualified life guard. Her many qualifications include CFR,CFRA,CFRI,OPF,PFA &EFR. Responding to emergencies is something we think every parent will want to know more about.
Our emergency response session will be followed by a Q&A discussion on common things that affect us as parents of child born with cleft. As a committee we can share our combined experiences but we also want to know where the pressure points are in the service currently.
If you can send any items of specific interest in advance please email firstname.lastname@example.org.
There is no charge for the evening. All are welcome but please send us an email to help us with bookings.
CLAPAI’s Family Day, our most anticipated day of the year, is back for 2017. It will be held from 10am – 4pm on Saturday 17 June at Bay Sports Athlone!
We have planned a fun, active day at this great water park facility for the kids. There is always a great social atmosphere for parents to meet and catch up. The facility has a special baby water park for those under 6.
For further details on change of clothes needed, cost of wetsuit hire or to book please contact us by twitter, Facebook or email.
The Cleft Lip and Palate Association of Ireland Information Evening 2016
Thursday 24th November at 8pm, (Doors open from 7:30), Clarion Hotel Dublin, near Liffey Valley.
8:00pm Welcome & Annual General Meeting
8:20pm “I found speaking pretty hard to do”, The impact of parents, teachers and speech therapists working together
Presented by Angie Dromgoole Mother, Audrey Byrne Teacher, Antonia Hussey SLT and facilitated by Roberta Fleming, Speech Language Therapist, Temple Street, CUH
8:50pm Dental Health getting the Best Results for Children Born with a Cleft
Presented by Dr Eleanor Mc Govern, Consultant Paediatric Dentist,Temple Street CUH
9:20pm Tea/Coffee & General Chat
Information evenings are a great way to meet people so please come along. To help us plan r.s.v.p. to email@example.com. Admission is free.
It is that wonderful time of year again when the world appreciates smiles, and smiles of all types. It is also the time of year when charities around the world that help people with facial differences come together to both campaign for the people they represent and also to fundraise.
We’d love you to send us in your photos and also to help us fundraise this year. We are partnering with Operation Smile, a charity that supports operations for children with clefts across the developing world.
We are encouraging local communities to help us out this October by having tea mornings, bakes sales at work or school, book clubs and any other idea you can think off to raise money for us and Operation Smile.
If you want to get in touch, or if you are interested in helping us out please contact firstname.lastname@example.org.
CLAPAI’s most anticipated and fun day of the year is back again for 2016 and will be held from 10am on Saturday 18 June at the Tallaght Leisure Centre!
We are planning a fun, active day for the kids and a social atmosphere for parents to meet with plenty of surprises throughout the day!
You’ll find a booking form attached here which you can send back to us. Family Activity Day 2016 Booking Form & News V1.3
Watch this space for further details of the day.
The Parent Led Articulation Therapy (PLAT) project has been on-going for a number of months now and the research group so far is showing very promising results.
To get the best results possible for everyone we are encouraging new volunteers to get involved.
This two centre study is being run by Dr. Triona Sweeney, Trinity College Dublin and Dr. Debbie Sell, Great Ormond Street Hospital. Parents are encouraged to participate in this study as this will help us find out whether this novel new approach to speech therapy for children with cleft palate related speech problems is effective. Four parents who have already attended the training course were extremely positive about the programme. Following the home programme they said that “you feel like you are instrumental – taking some power yourself”, and how they realised that children “need a little bit every day, a weekly appointment is not enough”.
If you want further information about the project contact your cleft unit or Triona by phone at 085 1754614 or email email@example.com.