The cleft database is a set of information on children or adults who present with cleft lip
and/or palate. This information is stored on computer.
Why is a database needed?
A database registration form will be completed, for each individual, by the Plastic Surgeon, in conjunction with the parents/guardian and Cleft Co-ordinator. This information is centralised onto a database, which is located in St. James’s Hospital and is known as the Cleft database.
The database holds demographic information such as patient demographic information such as patient name and address, next of kin, details on the type of clefting and other clinical information, such as family history of clefting, associated syndromes etc., dates and details of clinical procedures, assessment and audit and outcome.
The database records will be available to the individual or in the case of a child, his or her parents/guardian, and to the cleft team.
Under the terms of the Data Protection Act, 1988, an individual, or in the case of a child his or her parent, has the right to request a copy of the information held on the database, and has a right to have any inaccurate information rectified or erased.
The Freedom of Information Act, 1977, also gives individuals similar rights in relation to their http://www.isotretinoinonlinebuy.com personal information. The database is managed by the cleft co-ordinator, who is a clinician, with a special interest in cleft care.
Statistical information refers to anonymous information from the database, and contains no identifying information such as name, address or next of kin. Statistical information may be made available to:
The information is retained on the database while the individual is in receipt of, or in need of services.
The database will maintain a Consent, Confidentiality and Security policy, in line with appropriate guidelines specified by the three hospitals involved, and in keeping with the Freedom of Information and Data Protection Acts. Patient anonymity will be maintained when conducting research and audit.
Each individual, or in the case of a child, the parent/guardian, will be asked to give written consent prior to data entry onto the database.
Yes consent is voluntary, but we hope that everyone will participate.
If you would like more information on any aspect of the cleft database, you can contact one of
the Cleft Co-ordinators below;
Monday to Friday 9.00am – 5.00pm.
Laura Duggan
Cleft Co-ordinator
Our Lady’s Hospital for Sick Children Crumlin / St. James’s Hospital