We are appealing to families to raise or donate €100 to the Cleft Lip & Palate Association of Ireland (CLAPAI) so that together in 2015 we can fund the next phase of important Speech Therapy Research.
Why Speech Therapy? On average, treat 140 babies per year are born in Ireland with a cleft. Over half will have speech problems because they are unable to make sounds in the normal way. Speech therapy is a proven method of enabling children to make the sounds they find difficult. Continue reading
Right: Group Photo taken in Dublin Zoo. Click image to view large size (2019px x 1051px, 790kb).
Thank you to all who came, we expect that there were many tired children on Saturday night! And even more tired adults! And thank you too to the Zoo staff and to the army for hosting and feeding us in McKee Barracks. Â This is the third year that the army have been involved with out Family Day, and they have been great!
Many of our readers will know Ena Lynn from her work with the Health Research Board. For those of you that don’t, Ena has had the extraordinary job of collecting clinical data and samples from cleft affected families all over Ireland. When she started three years ago, there were 112 samples (collected with the help of the Association). Thankfully at the time there were enough samples to help researchers secure a fund for further work.
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Congratulations to Ronan Ely who not only completed the Dublin City Marathon in 4 hours 30 mins, sale he raised €2, prostate 700 for the Association. Ronan, who is studying Business Studies in Cork Institute Technology, travelled to our recent Information Evening to present the Association with a cheque for €2,400.
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We recently had a query from one of our parents about Root Canal Treatment. On a routine visit to the Orthodontist in St. James’s Hospital our parent was advised that root canal treatment might be needed for daughter Christina. The question raised was where could root canal treatment be received and would there be a cost.
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On September 14th 2004 the first international conference of European Cleft Lip & Palate support groups took place. CLAPA Uk hosted the event, nurse which was held in London. It was a tremendous success thanks to all the speakers and delegates who made it such an interesting day. CLAPAI chairman Eddie Byrne made a presentation outlining how cleft is treated in Ireland and how the Association operates here. Valuable contacts have been made particularly with Associations that are similar in size. It is planned to hold another conference next year.
As fundraising efforts have shown, there is a gap in public awareness of cleft lip & palate. In recent times however there has been more national publicity, which is to be welcomed. In July, Laura was on TV3 with Mr. Earley. The topic under discussion was the real value of plastic surgery versus cosmetic surgery. Both participants came across well. The result was the profile of cleft was raised at a national level.
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The theme for this year’s conference was “Setting a positive agenda in cleft & craniofacial care”. The conference was attended by members of cleft teams from both Temple Street & Crumlin hospitals.
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The Association has been talking to Mr. Mc Cann about new developments in the West. We are happy to report that recruitment is under way to get a full time Speech and Language Therapist along with a Counsellor and hopefully a Cleft Coordinator.
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The Association’s first ever Family Activity Day, held in Arklow, Co. Wicklow, on the 19th June 2004, has proved a great success. Ten families attended, including some twenty children and their parents. Children ranged in age from 1 to 16 years, and they participated in water-based activities, football and fun games. Parents were not slow to participate and everyone admitted to having a wonderful time. Canoes, kayaks, row boats, speed boats! And no one afraid to get their feet wet. The soccer game proved a forty-goal thriller! As for the ‘Royal Rumble’!
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