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Cleft Lip and Palate Association of Ireland

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Posted on March 16th, 2007


The Cleft Palate Story

by Samuel Berkowitz, Quintessence Publishing Co, Inc., Chicago, 1994. ISBN 0867152591 219pp.
[S. Berkowitz , Orthodontist, Clinical Professor of Pediatrics and Surgery, University of Miami School of Medicine, and Research Director, Plastics Surgery Dept., Miami Children’s Hospital, Miami, Florida]
Available online at http://medpro.smiletrain.org/library/PublicLibrary.html (each chapter as a pdf document).

To quote from the preface, “hospital personnel involved in the delivery and nursery often have little or no experience with clefts, and they are often unable to offer as much aid or advice as parents would like. …I believe parents are motivated and capable of understanding more about their children’s clefts”. This amply illustrated book is a practical yet comprehensive guide which describes how the condition can be managed and a successful outcome realised.
Chapters: 1.When a child is born with a cleft. 2. Feeding your child. 3. The anatomy of clefts. 4. The causes of clefting. 5. The cleft palate team. 6. Preparing for surgery. 7. Surgery. 8. Facial and dental concerns. 8. Speech concerns. 9. Hearing concerns. 11. What you need to know.

Your Cleft-Affected Child: The Complete Book of Information, Resources, and Hope

by Carrie Gruman-Trinkner
Hunter House Publishers, U.S.A.
(2001)
288pp.
P/B 0897931858 H/B 0897931866

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Cleft Lip and/or Palate: Report of a CSAG Committee

* London: The Stationery Office, 1998. 119p. (A4 size)
ISBN 0113221037 Price st£15.00
This, the 15th report of the Clinical Standards Advisory Group, reports on the standards of clinical care, access to and availability of services to UK NHS patients, and makes recommendations based on the conclusions drawn.
The report reviews existing clinical standards, research efforts, the effectiveness of various centres and surgical outcomes, parent satisfaction, plus it compares UK levels of treatment with two centres on mainland Europe, namely Oslo and Nantes.
While heavily laden with statistical data and comparision, it is useful in that in represents a thorough review of cleft care in our nearest neighbour, and presents a useful point of comparision for treatment in Ireland.
See extensive review and summary (reproduced here from EHB report)

Also summary article in:
Sandy, J. et al. (1998) The Clinical Standards Advisory Group (CSAG) Cleft Lip and Palate Study. British Journal of Orthodontics. Feb, 25(1):21-30.

Pages: 1 2 3 4

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