Attention all Parents

Posted on March 10th, 2010

Are you a parent of a child with a diagnosis of a Cleft Lip and/or Palate? If so, would you be interested in helping to inform the development of services so that they might better support both your child and yourself?

The Cleft Team at The Children’s University Hospital, Temple Street, and the Cleft Lip and Palate Association of Ireland, are working together to identify the support needs of children and parents. To this end, it is proposed to run a focus group at which parents will be given an opportunity to reflect on their experience of having a child born with a cleft lip and / or palate and, from this, to identify supports that parents and families would find useful and appropriate in dealing with the diagnosis and the ongoing condition and its impact on their child. The Association will be inviting parents to participate in this focus group, which will be facilitated by social work staff from Temple Street.

The information gathered through the focus group will be used to assist the development and piloting of support services for parents and children attending Temple Street. Participants will be kept informed about the outcomes from the focus group and any subsequent developments through the newsletter.

The Association will be inviting parents to participate in this focus group in the coming weeks as part of a random selection. Date, time and location will be included in the invitation.

If you have any queries at this stage please contact Mrs Georgina Wade CLAPAI on 087 1319803, or bye-mail to info@cleft.ie

Tags: focus group
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Cleft Conference Photos

Posted on February 8th, 2010

The Dublin Cleft Centre Conference was held on the 13th March, 2008. The theme of the conference was “Cleft Lip and Palate: The Journey of Care from Birth to Adulthood”.

Below: Cathaoirleach Georgina Wade with Professor Brendan Drumm, CEO of the HSE.
Georgina Wade and Professor Brendan Drumm

The conference was held in the Hilton Dublin Hotel, Charlemont Place, Dublin 2. The aim of the conference was to provide an overview of the journey of care of a baby born with Cleft Lip and Palate from birth to adulthood.

More photos from the conference can be viewed on our photo gallery.

Tags: conference
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CLP Resource Pack for Speech and Language Therapists

Posted on November 22nd, 2009

The “Cleft Lip and Palate and Palatal Anomalies SIG” are a Special Interest Group that have recently produced a resource pack for Speech and Language Therapists working with children with Cleft Lip and Palate in different clinical settings.

This resource contains very specific information ranging from the care pathway to therapy that can be conducted with children from earliest stage of babble stimulation right through to specific techniques to articulation therapy as well as instrumental assessment techniques that are available.

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Tags: speech and language therapy
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Podcasts Now Available!

Posted on September 26th, 2008

Podcast We are now making available our posts as podcasts, courtesy of the Odiogo service. So now you can LISTEN rather than read, should you like!
AND by subscribing to our podcast you can download new posts in mp3 format to your iTunes or Juice player and listen to them as and when you want.

OR, if you prefer, select the ‘listen now’ button and listen in situ!

How to subscribe… | RSS Podcast Feed |

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Operation Smile Ireland - Largest Ever Effort

Posted on February 14th, 2008

In November 2007, 23 Irish medical volunteers went to Ethiopia, Kenya and Morocco. Between them they treated 250 patients in a two-week period. Co-ordinator Anne McGillivary was based in Jimma, Ethiopia, along with Mr. David Orr and Triona Sweeney. The conditions in Jimma were particularly challenging but the team managed to screen 157 patients and perform 127 surgeries. Patients’ ages ranged from 3 mths to 68 years!