Are you a parent of a child with a diagnosis of a Cleft Lip and/or Palate? If so, for sale would you be interested in helping to inform the development of services so that they might better support both your child and yourself?
The Cleft Team at The Children’s University Hospital, order Temple Street, and the Cleft Lip and Palate Association of Ireland, are working together to identify the support needs of children and parents. To this end, it is proposed to run a focus group at which parents will be given an opportunity to reflect on their experience of having a child born with a cleft lip and / or palate and, from this, to identify supports that parents and families would find useful and appropriate in dealing with the diagnosis and the ongoing condition and its impact on their child.  The Association will be inviting parents to participate in this focus group, which will be facilitated by social work staff from Temple Street.
The information gathered through the focus group will be used to assist the development and piloting of support services for parents and children attending Temple Street. Participants will be kept informed about the outcomes from the focus group and any subsequent developments through the newsletter.
The Association will be inviting parents to participate in this focus group in the coming weeks as part of a random selection. Date, time and location will be included in the invitation.
If you have any queries at this stage please contact Mrs Georgina Wade CLAPAI on 087 1319803, or bye-mail to info@cleft.ie
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